Lupus brings 2 local women into supportive friendship
by Laura Braddick
lbraddick@cherokeetribune.com
April 27, 2011 10:39 PM | 3974 views | 2 2 comments | 13 13 recommendations | email to a friend | print
Friends Karon Beasley of Towne Lake, left, and Stacie Collett of Holly Springs both suffer from lupus. They will walk in the Fifth Annual Walk for Lupus Now on Saturday at Piedmont Park in Atlanta to raise awareness of the autoimmune disease and funds for the Georgia chapter of the Lupus Foundation of America. Ms. Beasley will be walking with her dog, Wendi.<br>Cherokee Tribune/Todd Hull
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Karon Beasley and Stacie Collett both know what it’s like to be misunderstood.

The Cherokee County residents are just two of the 55,000 Georgians who suffer from lupus.

The autoimmune disease can affect various parts of the body including the heart, kidneys, lungs, skin and joints.

Symptoms can include painful joints, anemia, rashes, hair loss, ulcers and more that range from moderate to severe.

There is no known cause or cure.

Unlike many other chronic diseases, however, the signs and symptoms of lupus cannot always be seen.

“You don’t look sick, but you’re sitting there suffering,” said Ms. Beasley, a Towne Lake resident. “I think it’s one of the biggest forms of discrimination to judge someone with an illness on how they physically look.”

Although they live just a few miles down Interstate 575 from each other, Ms. Beasley and Mrs. Collett only met a year ago when the Tribune featured them in a story on the annual Walk for Lupus Now.

The two women will be participating again in this year’s event, which takes place 4 p.m. on Saturday at Piedmont Park in Atlanta.

“We’re blessed to know each other and be friends,” said Ms. Beasley. “It’s very important not to be alone with an illness.”

The women count on each other to listen and understand what’s going on with their health.

“They call lupus the disease of a 1,000 faces because it can affect people so differently,” said Mrs. Collett, a Holly Springs resident. “But our [cases] are similar. I’d say they were 90 percent the same.”

Stricken by waves of debilitating fatigue, the women both have to divvy up their energy and take naps.

“I go to the doctor and come back and take a two-hour nap,” said Mrs. Collett.

Both women even see the same rheumatologist, Dr. Kimberly Wilson, at Piedmont Hospital in Atlanta.

“(Stacie) can call me, and I can understand what’s wrong and what’s going on,” said Ms. Beasley.

The women also know what it’s like to take multiple medications a day just to manage symptoms.

Ms. Beasley said she takes about 15 different medications or almost 45 pills per day.

Mrs. Collett’s regimen is similar.

“My lupus has remained very active despite taking an arsenal of powerful medications each day including chemo,” she said.

Along with being each other’s support system, the women both actively help support others affected by the disease through the Georgia chapter of the Lupus Foundation of America.

“I have significant damage from not being diagnosed sooner,” said Ms. Beasley. “That’s why we walk — to raise awareness.”

After first getting sick in 1994, Ms. Beasley visited five doctors before being diagnosed at the end of 1998.

She said it’s surprising how many people live with the disease for years undiagnosed.

“I think I’ve had it since I was a teenager,” added Mrs. Collett, who was formally diagnosed in 2005. “My mother could never keep me well.”

Mrs. Collett has formed a team with her family called JustHope, in honor of her children, Justin and Hope. Her personal fundraising goal is $700, and her team’s overall goal is $1,200.

Ms. Beasley will be walking as an individual, along with her dog, Wendi, with a goal of $1,000.

A large portion of walk proceeds will stay in the state to support the local chapter’s programs while another portion goes toward national research efforts.

But along with raising public awareness, the women said the event does more by bringing together the community of those affected by the disease.

“It’s important for patients to feel validated and see others like them,” said Ms. Beasley. “It’s a moving experience.”
Comments
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Stacie Collett
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May 04, 2011
Thank you Sue, I hope you can make it to the walk next year. It's a very moving experience, even if you're not able to walk, there are many that can't. It would give you a chance to meet people and share your story in hopes to help others.

Feel free to call the Lupus Foundation of America office 770-333-5930. Maybe one day soon we will have a support group in the Cherokee area.
Sue Hansard
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May 04, 2011
I also suffer from Lupus and Sjogren's Syndrome which is a autoimmune disease also and effects your muscels.I know how public judgements are.No one can understand wht you go thru just to get thru life. The adjustments you have to make daily.

I was able to walk in the walk once.I'm having extreme trouble with my feet and legs at the moment.Good luck on your walk.

Sue Hansard from Macedonia community.
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